Monday Medical Awareness: Inflammatory Breast Cancer:Part 3

Finally, I had my appointment with a nurse at Planned Parenthood and guess what she said after 2 minutes in the room with me? You have mastitis and I'll get you a prescription for antibiotics. Guess what I did? I stood straight up and told her I did NOT have an infection, I had Inflammatory Breast Cancer that was spreading as we wasting time standing there and I demanded to see someone who could tell the difference between an infection and cancer. I wasn't rude or loud, but I was firm and explained the symptoms of IBC versus mastitis and the length of time I had been dealing with this. Cut to the end of the day -- I got a referral under the Susan G. Komen fund to see a breast specialist (who knew all about IBC) for a biopsy. Made an appointment - another month to wait - this is getting old!

I met with the breast surgeon in December - what an awesome woman! She had much experience with IBC and knew immediately that is what I had. She did an ultrasound and tried several needle biopsies but was not able to get the needle through the tumor. We ended up doing punch biopsies, and even then had a bit of trouble. This was one huge, tough pile of cancer!! On January 7, 2004 by results came back: Inflammatory Breast Cancer. I found a wonderful oncologist who was experiened with IBC, and know that I was very fortunate because most doctors have never heard of IBC, and a large percentage of oncologists don't know much about it. I saw my oncologist for the first time on January 12 and started a hard course of chemotherapy on January 13. I ended my initial treatments (chemo, bilateral mastectomy, 6 weeks of radiation) in July 2004, was stable for about 8 months and then the darn cancer starting spreading again. It's a game I play now, kind of like hide-and-seek. So far the doctor and I have been able to find the hiding places before it gets in too far, but you must stay aware of changes in every aspect of your life - advocate for yourself when you don't feel right!

Here it is, 6 years from my first indication and 5+ years from the start of my real battle against this disease. I have a Stage IV disease, which means it spread from the primary location to other parts of my body. As of today, it has been found in both breasts, the chest wall, the right lung pleura, and sacrum and iliac bones. Tomorrow I go for results of my recent tests and am expecting to see more spreading (we cancer folks call it "mets" short for metastisis). What I said about being an advocate, here's how it pays off big - I'm Still Here!!!!!

Had I not known what I was probably facing and demanded further clinical care, had I not found a breast specialist well-versed in IBC, had I not found a doctor keeping up with treatment for IBC and willing to treat me as a whole person and not just a diseased breast, had I not asked and questioned at every stop what my options were - I would NOT still be here!

The video here is one of the best pieces I've ever seen on explaining IBC and devoting enough time to really talk about it. The Komen Foundation has also recently posted a video specifically on IBC that is worth a watch (posted on Facebook on the Susan G. Komen For A Cure group page). The link list below are my favorite sites to send people to when they have questions about breast cancer and IBC or are seeking help, support, and/or information. Please bookmark them so you can share them, too, if the need should ever arise.

I wish you all the best of health and remember to Feel Your Boobies! And don't wait if you notice *anything* out of the ordinary. And don't think one doctor's word is the last word. No matter what you and your Ta-Tas may face, they are your girls and you have the last word. Be an advocate for your healthy life.

Inflammatory Breast Cancer Research Foundation
http://ibcresearch.org/

Imaginis Women's Health Resource
http://www.imaginis.com/breasthealth/breast_cancer.asp

Dr. Susan Love Research Foundation
http://www.dslrf.org/index.asp?

Susan G. Komen For The Cure
http://ww5.komen.org/uploadedFiles/Content_Binaries/806-03202a.pdf


Blessings,
~Sandie
http://flyingwithteens.blogspot.com/

Monday Medical Awareness: Inflammatory Breast Cancer:Part 2

My biggest piece of advice is this: Be a strong and unwavering advocate for yourself! If you can't, enlist the help of someone who can. Nothing will be more important in battling IBC than making sure you know your options. Let me give you a scenario to show you what kind of effect this can have. In May 2003, I started to feel some pain at the top of my right breast. I had some scar tissue there from the removal of a mole years earlier, so started to search the Internet for problems arising with scar tissue. Believe it or not, there are instances when scar tissue will rupture and I assumed this to be the problem. In June it was worse and swelling quite a bit. Back to the Internet I went and this time went searching for specific breast problems. Most of what I came up with indicated mastitis, a breast infection commonly seen in women while breastfeeding. LOL I was 41 and hadn't breast fed for over 6 years! I kept searching and finally landed on a site for inflammatory breast cancer. Over and over the symptoms were exactly what I had, and in fact, one site said that most doctors initially misdiagnose IBC as mastitis! Now that I knew (and I DID know, in my heart) what was wrong, I set about trying to find a doctor who would see me for a positive diagnosis. Now the real nightmare begins....I had no insurance so I was passed around from clinic to clinic and no one could really give me any information. When I told them I had IBC, they were surprisingly unreactive, which I believe is because they had no idea what I was talking about. Long story short, I found out in August that there is a program in Colorado that will cover uninsured/underinsured women for breast exam and referral, if necessary. After a few hundered more phone calls and another month, I got a list of participating clinics - far and few between outside of the immediate Denver area. At that time, Planned Parenthood participated and there is an office 10 miles away so I called them right up and made an appointment for October. When the day finally arrived, I showed up early so I could explain why I was there and guess what? They didn't have my appointment logged and no one there that could see me (read as "no educated nurse/doctor/specialst in the house"). Deep down I was terrified to have an actual diagnosis - something that would make it real - so I politely rescheduled my appointment. I had to wait another month.

Come Back to Read Part Part 3
Tomorrow

To visit Sandies Blog-Click Here

Tackle It Tuesday-Getting College Applications Filled Out!

I have a daughter that is a Senior in High School. We are in a frenzy getting applications and stuff filled out. It seems never ending.

There is so much to it. One thing is for sure...if you don't fill out the forms and go the extra mile you will not get any financial aid or scholarships.

I spoke to one mom recently whose daughter has been in college for 3 years and didn't know that there was forms to fill out to get financial aid.

The first thing all college students should do is go to fafsa.ed.gov and fill out this form and submit it. You will have to have finished your filing your taxes for the year and use those forms to help you. You need to do this as soon as you can after Jan 1 of every year you are in school. You have to refile every year.

You also need to decide which schools you are interested in and find out what their deadline for applications are to be elligible for different scholarships. They are earlier that I realized and we missed some of them.

Be sure to apply to all colleges that you are possibly interested in...you may be surprised who gives you the most money.

This is our tackle and I don't think we will be done in one day.

Kroger Deals: Sale Week of March 23

$.99 Cantaloupe

$.77/each Cucumbers

$.25/each Apples: Gala, Granny, Red or Golden Delicious

$2.99 Kroger Russet Potatoes 10 pound bag

$.68/pound Sweet Potatoes

$1.89 Kroger Onions 3 pound bag

$1.49/pound Ground Beef

$1.88/pound Tyson Chicken Breast

$1 Rosarita Refried Beans
$.50 on 2 in the February All You (exp 4/30)
Net Price $.50 each

$1.79 Little Debbie 100 calorie packs (regular price)
$.55 in the February All You (exp 4/30)
$.45 via Upromise eCoupons (be sure to register your Kroger card)
Net Price $.79 each - $.35 after Upromise eCoupon deposit!

$1.19 Frank's Red Hot Sauce (regular price)
$.50 in the 1/18 SS Insert (exp 5/16)
$.50 Printable here
Net Price $.19 each

$1.50 Quaker Instant or Simple Harvest Oatmeal *must buy 2 to get this price*
$1 on 2 in the 2/8 RP Insert (exp 4/30)
$1 on 2 Printable here
Net Price $1 each

$1 Pillsbury Biscuits, Rolls or Crust *must buy 4 to get this price*
$1 on 2 on Crescent Rolls in the 2/8 SS Insert (exp 5/2)
$.25 on Crescent Rolls in the 3/15 SS Insert (exp 6/6)
$.35 on Crescent Rolls Printable here
$.35 on Cinnamon Rolls Printable here
$.60 on 2 Crust Printable here
$.40 on Crust in the 1/25 SS Insert (exp 4/18)
$.50 on 2 Biscuits Printable here
$.30 on 2 Biscuits in the 3/15 SS Insert (exp 6/6)
$.40 on 3 in the 1/4 SS Insert (exp 3/28)
$1 on 2 in the 2/8 SS Insert (exp 5/2)
Net Price $.50 - $.75 each

$1.99 Gallon Milk

$2.49 Yo-Plus Yogurt (regular price)
$1 Printable here
Net Price $1.49 each

$.99 Cottonelle Toilet Paper 4-pack
$.50 on 2 in the 3/15 SS Insert (exp 4/26)
$.50 Printable here (print two from each link)
$.25 via Cellfire (you can use the widget in my side bar too)
Net Price FREE - $.50 each

Rite Aid Deals: Week of 3/22-3/28

What’s Free this Week:

3 pkTrident Gum 3 pk $1.99
Use $2 MQ (3/8 SS)
= Free

Single Cash Rebate Items (SCR):

Always Pads/Tampax Tampons $2.99
Use $1 SCR
Combine w/Tampax $.50/1 MQ or Always $.50 MQ (3/1 P&G)
= $1.49 for Tampax, $1.99 for Always

Breath RX 2/$18
Use $10 SCR
= 2/$8

Synovium, Profoot gel insoles, and Flextastic 3/$15
Use $10 wyb 3 SCR
= 3/$5

Huggies Diapers/Pullups $9.99
Use $2 SCR
Combine w/ $1.50 MQ
Mail In $.75 Caregivers rebate
= $2.24 a pk

Best Buys:

Garnier 100% Color hair color $3.99
Use $2 MQ (3/8 RP)
= $1.99

L’Oreal- Buy Mascara, Get Eye liner or Eye shadow Free
Use (2) $2/1 MQ (1/4 RP)
= Price Varies

Benadryl Allergy $3.99
Use $1 MQ (3/15 RP)
= $2.99

Air Wick Air Freshner $.79
Use B1G1F MQ (3/8 SS)
= 2/$.79

3 pk Dentyne Gum $1.99
Use $1 MQ (2/22 SS)
= $.99

Easter B1G1F Deals:

Russell Stover Boxed chocolates
Hershey’s Bliss eggs
Dove eggs
Dove coconut carmel candy
Peeps
Easter M&Ms
Brach’s jelly beans